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LGBTQIA+ Resources for Health Professionals: Research with LGBTQIA+ Populations and Datasets
This guide provides resources for health professionals and their LGBTQIA+ patients.
LGBTQIA+ Research Data
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State of LGBTQ Health™ Second Annual National SurveyAccording to the National Coalition for LGBTQ Health: "The Second Annual State of LGBTQ Health National Survey engaged 1,023 diverse and representative healthcare providers, spanning a broad spectrum of racial, ethnic, and sexual identities and hailing from various geographic, educational, and income backgrounds. Notably, the demographics of the survey participants closely mirrored the current composition of healthcare professionals in the United States."
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LGBTQ Equality by StateThe Movement Advancement Project (MAP) tracks LGBTQ-related laws and policies in the US. The results can be filtered by sexual orientation, gender identity, and state.
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Gender & LGBTQ DataThis is the Pew Research Center's main page for all data and reports related to "Gender & LGBTQ" topics.
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LGBT+ Legal Equality IndexThe index captures to which extent LGBT+ people have the same rights as straight and cisgender people. It combines 15individual policies, such as the legality of same-sex relationships, marriage, and gender marker changes. It ranges from 0 to100 (most equal).
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UCLA Williams InstituteThe Williams Institute at UCLA School of Law conducts research on law and public policy related to sexual orientation and gender identity. Data projects and publications are available on many "LGBT" related topics including the TransPop project, "LGBT" older adults, "LGBT" people of color, the Global Acceptance Index.
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Data InteractivesThe Williams Institute offers interactive data visuals for much of their information on "LGBT people in the United States." Data topics include LGBTQ Parenting, Transgender People in the United States, Race and Well-Being Among LGBT Adults, and HIV Criminalization in the US.
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U.S. Trans SurveyThe U.S. Trans Survey (USTS) was conducted in 2022 to gain more data about the libes and experiences of trans people in the U.S., especially the disparities faced by many. The data is intended to motivate future research, policy, and advocacy to improve the lives of trans and gender diverse people in the U.S.
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HIV Policy LabThe HIV Policy Lab at Georgetown Law's O'Neill Institute Center for Global Health Policy and Politics tracks and measures HIV-related law and policy around the world.
Conducting Health Sciences Research with LGBTQIA+ Populations
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Creating Welcoming and Affirming Clinical Studies for LGBTQIA+ Participants ToolkitThis toolkit from the Fenway Institute is meant for healthcare providers and research engaged in clinical research. Best practices are provided for ensuring that the LGBTQIA+ community is supported and included in clinical research.
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Ready, Set, Go! Guidelines and Tips For Collecting Patient Data on Sexual Orientation and Gender Identity (SOGI)This guide from the Fenway Institute includes recommendation for health researchers and organizations collecting sexual orientation and gender identity data. Information is also included on moving from data collection in research to analysis.
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Let's Talk Gender: Ten Things Transgender and Nonbinary Youth Want All Researchers to Know (Dixon et al., 2022)Authors present findings from a research-based youth engagement initiative with transgender and non-binary youth. Guidelines and recommendation for research with trans and nonbinary youth include acknowledging a gender spectrum for participants and engaging directly with trans and nonbinary youth in the research process.
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Methodological Considerations for Advancing Research on the Health and Wellbeing of Sexual and Gender Minority Youth (Schrager et al., 2019)Authors present the unique ethical and methodological considerations required for work with sexual and gender minority youth in order to protect their privacy. This article further explores these challenges and present best practices for ethical research with sexual and gender minority youth.
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Research Ethics with Gender and Sexually Diverse Persons (Henrickson et al., 2020)Authors present the "Montréal Ethical Principles for Inclusive Research" to provide guidelines for researching health and social inequities related to gender and sexually diverse populations.